What My Mom’s Dementia Tells Me
One of the biggest challenges my family has faced in my lifetime is my mother’s dementia.
She doesn’t have a firm diagnosis because she manifests symptoms of Alzheimer’s and frontotemporal dementia along with Parkinsonism, and more if we really teased out every symptom she’s had.
If you met her you’d think she was pleasant and happy, provided you met her in the morning after a good night’s sleep and chatted with her for only a few minutes.
If you had to spend any more than five to 10 minutes with her you’d begin to notice something wasn’t quite right. That window of time has narrowed; two years ago she appeared normal for 15 to 30 minutes. It’s a good day now when she can hold it together in public for 10 minutes.
Today was my turn to take my mom out for an airing. We were in the thrift shop where she loves to browse but a mere five minutes before she said something obnoxious about a woman next to her on a cell phone.
Sure, you may yourself have been tempted to say something scathing about cell phone users in shared spaces, but you’d also note whether that person was taking an important call and observe other context about the person and call. And then you’d apply your personal filter, bite your tongue, and quietly walk away.
Not my mom. I couldn’t hustle her along fast enough before her filter broke.
I had to get my mom out of the house so my sibling could take care of some security issues in the home to keep my mom safe. She can’t be left alone any more and even when home with one of us she still might injure herself or others.
In essence, she’s become a nasty preschooler regressing toward toddlerhood.
References to elderly in census documents from two hundred years ago now make sense – this woman “reverted to childhood,” a census taker wrote about a woman in her 80s.
Eventually my mom will be placed in memory care, but until then we’re going to have take measures to protect her from herself, and protect others from her.
But this post isn’t really about my mother. She’s an example of someone who needs intervention and continuous care and is getting it.
This post is about Donald J. Trump, president of the United States, who needs intervention and continuous care and is NOT getting it.
Trump’s behavior reminds me so much of my mother’s I am terrified for this nation.
We’ve locked up the car keys, hidden the credit and debit cards, secured firearms to keep them from my mom who can’t make a rational decision let alone remember what she decided minutes or hours or days ago.
But no one is protecting Trump from himself or others.
We’ve cautioned family friends that Mom has dementia and can’t be relied upon for factual observations though they often already deduced that based on her confabulations. She ate breakfast three times one morning because she forgot each time and became defensive when reminded about it.
Trump has been told, reminded, and warned about treaties and the law and he just does what he wants, as if he hadn’t been cautioned. He gets defensive. He makes false claims like having ended eight wars, and he may actually believe that. This is not the same as eating three slices of toast over three hours or distorting a memory of a shared past event.
If only Trump’s behavior was that harmless.
My mom’s obnoxious lack of a filter won’t manifest itself in the breakdown of decades-long agreements between countries. The damage from her reflexive spouting can be limited by restricting her access to public venues where she won’t offend many or is tolerated by others.
Trump, however, gets on his social media platform or on email and dumps his sundowning anxieties on long-term allies to the detriment of national security and world peace. No one is stopping him (and some may even be encouraging him).
Sometimes Trump’s lack of filter is more narrowly aimed, like saying “Quiet, piggy” to a woman journalist asking him a question. Again, he’s allowed to continue to do this while wielding the power of the presidency, and not hustled along to prevent him from continuing to be offensive let alone stop him from abusing citizens’ rights.
White House staff are apparently unwilling or unable to check Trump’s behavior, if they aren’t abusing him and his office by manipulating him into acting out to disadvantage the U.S. and possibly to the advantage of themselves and others.
My mom can no longer drive and endanger others on the road. My dad’s firearms have been locked up so that she can’t hurt herself or others if she gets paranoid. Mom can only rant harmlessly at home when anxious. Thank goodness she can’t do anything more to herself or others.
Unfortunately, Trump has the largest military force under his control. He’s murdered people by direct or indirect orders, and without adequate accountability to the American people about his use of the military. He can incite others by venting his anxieties over social media.
Same, too, for his use of force against persons residing in the U.S. whether citizens, legal immigrants, or asylum seekers. Trump does not respect the judiciary, a branch of government co-equal to the executive branch, and he fails to demand departments under his control obey the law.
I can’t tell you how many times I have seen or heard Trump over the last 10 years and recognized the same behaviors in my mom and vice versa.
The shuffling gait down a ramp. The odd difficulty with stepping over changes in elevation. Challenges gripping objects like water glasses; stumbling for the right words like oranges instead of origins; failure to grab a vehicle door handle; frequently remembering events incorrectly and making up stuff along the way.
All fairly harmless symptoms until they interact with others, and then the magnitude of difference in their consequence is everything – suddenly all of Europe is insulted and scared, or an entire group of people must scramble for protection.
This can’t continue. This must be stopped before it gets worse, and it will get worse like my mother’s dementia. We can’t rely on his family to intervene – they are venally manipulating him and generally useless when it comes to care for his person.
Congress must protect the country by restraining the executive branch. It – and by it I mean specifically the GOP congressional caucus – has abandoned its role as the check on executive overreach. This, too, can’t continue.
If GOP members of Congress expect their party to survive the next three years, they need to put on their big people pants and collaborate on how to limit the power of a mafioso with dementia. It’s disgusting the GOP has simply folded under Trump’s weight like a broken lawnchair, abdicating their role in effective governance.
We know the GOP can step up; it once did when it checked Richard Nixon.
But if they don’t fulfill their oaths of office to protect and defend the Constitution instead of protecting their own butts, the American public will look to other role models for guidance with regard to restraining an out-of-control president. Enough other countries have dealt effectively with leaders who posed far less of a threat to their nation and the world – we can learn from them, just as my family is learning how to deal with my mom.




Oh, and fuck Robert F. Kennedy III for damaging the research ecosystem looking for the causes and cures for Alzheimer’s, dementia, and Parkinson’s. Congress still needs to deal with his irrational approach to public health.
Call your members of Congress at (202) 224-3121 and ask them to impeach and convict RFK III for abuses of office and incompetence.
And then tell them to collectively get a spine and find a way to restrain Trump.
Adam Kinzinger says it’s time to put Grandpa in a home.
https://www.threads.com/@adam_kinzinger/post/DTsfxJyja3b/video-put-grandpa-in-a-home
I see folks claiming this is ageist and ableist — except this is about a specific grandpa who is a danger to himself and others, like my mom but far worse in terms of potential danger.
“…White House staff are apparently unwilling or unable to check Trump’s behavior, if they aren’t abusing him and his office by manipulating him into acting out to disadvantage the U.S. and possibly to the advantage of themselves and others….”
They are using him to further their own plans. If you wonder what those plans are, you’ll find them in Project 2025 and in the words and writing of “moldbug” Curtis Yarvin, and his acolytes Peter Thiel & Elon Musk. And there are plenty more people in on the destruction of the United States. The male judges at SCOTUS for starters. Most repub politicians in the House and Senate. A lot of billionaires and CEOligarchs are using Trump to try and grab control of the USA. Oh, and “Russia Russia Russia”.
I don’t think any one group will succeed. But they are going to do inestimable damage to our country.
And Miller. And the Dominionists like Paula White.
It’s the inevitable outcome of the GOP goal, expressed clearly by Grover Norquist about the ideal POTUS: he only needs to be able to hold the pen to sign stuff.
As a note for Rayne, my mother died of dementia years ago but it was a long slog. Not only the interventions for her safety, but for me it was how many things came from nowhere we could identify. It made it much harder to prepare, and you have my sympathies. I wondered how much of her frustration was due to knowing what was actually going on but being unable to say it correctly.
Yep; been there, done that. Lost my brother to brain cancer (GBM), and I can attest that dementia is slow-motion cancer (or vice-versa). It’s a phenomenal challenge, and tests your basic humanity. I’m glad to say we passed the test, but I am reminded of a line from The Matrix (greatest documentary ever made): Not like this…not like this.
Bibi nominating him for a Nobel Prize was cruel.
That wasn’t cruelty alone — it was manipulation, seeding Trump’s narcissistic ego with a benchmark of legitimacy. Trump now wants to make a deal to get a Nobel because he sees it as a validation of his identity.
Netanyahu’s manipulation was intended to promote destabilization, keeping the US from focusing on Netanyahu’s corruption and crimes against humanity. This one manipulative act has destabilized NATO, keeping other member states preoccupied with Trump’s threats.
I noticed the following juxtaposition on a MAGA facebook profile, where their most recent photos were a button saying “I support a loved one with dementia” and then the iconic one of Trump raising his fist after the shooting attempt. The only thought I had was that most people put their loved ones in a care facility when their dementia becomes uncontrollable, not the White House.
My family members don’t tend to get dementia, but there were times when I wondered what my mother was talking about, as she’d say something that made no sense or didn’t jibe with earlier stuff.
Thank you Rayne. I wish you and your family all the best in caring for your mom. I appreciate your clear description of what we are seeing in the potus. Terrifying.
He realizes at some level that this is happening. That is why he keeps getting cognitive tests. He is trying to reassure himself that he is okay. He saw it happen to his father.
The doctors know, that’s why they keep testing him. He denies what they’re about.
I was diagnosed with early dementia from a brain scan done in my forties right after I remarried. We walked around the farm discussing how to take care of me when it got too bad. Fortunately it was not early alzheimers & it is just now in our latest crisis that the full impact is being felt. It appears to be FTD. Now I look back & see that many of my reactions over the years were the effects of the dementia which was the reason I couldn’t control them. I had thought since it wasn’t early alzheimers that I had been misdiagnosed. Trump has probably had this going even more than ten years. Perhaps every dictator has it
Very sorry you’ve been dealing with FTD; it must have been and continue to be frustrating not to have your reactions completely under your control. I’m glad my parents had the foresight to establish a living trust and executed healthcare directives and durable power of attorney so that their adult children knew what their wishes are while ensuring the legal tools were there to achieve them. I encourage you to do the same while you have the capacity to do so: put it in writing, get it witnessed and notarized, and if you can, ensure your witnesses are people your family trusts and understand the challenges your family will face in the years ahead.
It was an enormous gift to find my parents relied on a couple they have known since before I was born — a retired educator and a former healthcare professional who’ve been like family to us — to witness their documents. We’ve been able to discuss what’s happening with them and they’ve ratified both the documents and the choices we’re making.
Best wishes to you and yours.
Can’t support this enough- 100%. I will forever be grateful to both my parents for make it VERY clear about how they wanted their death(s) to be ‘supervised’. It alleviated any possible guilt, and let me confidently lead the rest of my family through the process. My brother, I think, was going through the initial stage of his (yet undiagnosed) brain tumor, and was distraught with me. But looking back, Rayne’s advice is what I appreciate having had in my family’s life at the time.
Screw antivaxers Little RFK and MTG. I didn’t stop hating MTG just because she broke up with Trump.
Magnet48, I’ve reread your comment many times. The first time, your forthright presentation of what seems like a terrifying–even, for most, unendurable–experience stunned me into keyboard silence. My respect and admiration for your attitude, and the generosity with which you shared your history, must remain inchoate: I can’t find words powerful enough to express what I feel.
Twenty years ago yesterday I was diagnosed with “early” Parkinson’s, which means you’re under fifty, which I was…by five days. Then-experimental scans confirmed that I had indeed lost well beyod the threshold percentage of transmitters in the back of my brain–where the action is. Or isn’t.
I’ve had tremor, most noticeable in my face, since I was a teenager. The symptom got me referred to a neurologist was the onset of “freezing,” where you think you’re about to take a step (or perform some other act) and your body says no.
Drugs helped some, but Parkinson’s has gotten little attention from big Pharma–not a glamour disease, and hard to untangle, as brain related things tend to be. I was lucky: mine did not progress in the typical fashion, which is why I can write here. But the fear of that darkness descending will haunt me until…well, it descends.
Rayne – thank you so much for a much needed discussion and expose’ of Donald Trump’s on-going descent into dementia. Alzheimers/dementia has impacted my family so much. My mother died from complications (choking from inability to swallow) of Alzheimer’s at 82 but the last 10 years of her life were lived in a fog where she lost all filters, and ultimately, the ability to remember who I was. My beautiful, brilliant older sister died of premature onset Alzheimers at 61 and I think of her every day. My mother’s decline included fits of anger and petulance much like we are seeing with Trump now and no one within government seems to recognize the danger we are in. I live in Minnesota and the monster that this disease can create is releasing his carnage on my beautiful state. We are all in deadly peril. Thank you again.
Rayne, I understand. My mother-in-law had dementia, and my father-in-law was her full-time caregiver until his final hospitalization. Thank you for sharing these insights.
Rayne, your mother did not have Fred Trump and Roy Cohn in her formative years. Add delusions of grandeur and naked greed. Besides scale, it is so bad that JD taking the reins becomes acceptable and promising of something more sane, but meaner too. Add early dementia for Stephen Miller and it is uglier. That Usha is still close to Vance is a good sign as she comes across well. But Congressional Republicans deserve the greatest scorn as a false barrier. Greedy cowardice and stupidity such as Speaker Johnson hold little hope. It is a true picture of a world out there saying, “He got elected, not only is he a worry, but the people in the U.S. fail the reliability – trustworthy test.” Trump’s fault laden Cabinet will not remove him. We face three years of terror. With little to hope for.The billionaires turning is possible. Not likely, but possible. The bond market has to be uneasy.
Thank goodness my mother’s mentors weren’t corrupt sons of bitches like Trump’s father and Cohn; thank goodness, too, for her humble background and her lack of desire to do more than own a place to which she and dad could retire.
My mom is locked into her profession as part of her identity. She reminds people regularly she was a nurse. I suspect this same identity lock-in affects Trump as well. He reminds us all the time he’s a dealmaker and a real estate developer for which we pay dearly, through the unnecessary and damaging tariffs, and the destruction of the White House’s East Wing. People around him who are using him will lean into this, saying “Here’s a deal only you can make, Mr. President/Dad.” Gods help us about the next deals he makes.
The media has further exacerbated the situation by refusing to discuss Trump’s increasing disability. The world may blame the U.S. for reliability-trustworthiness, but the average American hasn’t been offered enough information on a regular basis about Trump’s incapacity. What they are told doesn’t offer a comprehensive picture of Trump’s condition, denying them the ability to make informed decisions. And then the propaganda — I need to catch the Fannie Mae ad featuring Trump and a lot of fluffy language about Trump’s accomplishments. No wonder this nation is stuck.
I dont see the GOP putting Grandpa in a home anytime soon. Not when around 80 percent of their voters approve of the job Trump is doing. I am putting my faith in the voters come November.
I looked up the link leading to the Alzheimer’s Association’s site with the explanation and coping recommendations re “sundowning” given in the post above. Towards the end they recommend “Avoid arguing. Offer reassurance that everything is all right.” I know I’d sound cynical if I’d assumed that that is what the WH staff is following; however, I can’t ban this thought once it emerged.
To Rayne, my deepest sympathies, and gratefulness for sharing what you and your family are going through right now (and have already been). I’m really touched since I had only a glimpse on dementia symptoms with my mother during her last year, before she passed away at age 91, and that was long ago. So that’s not comparable. I wish you all the strength you need (and I’m sorry for my clumsy wording, but English isn’t my native language).
Yes, good point about the coping recommendations. I suspect this is why Trump is apparently unfettered during his late day/evening social media and email use. It’d be nice to see an analysis of his posts and emails tracking time of day, tenor, and content because I’d bet the worst don’t happen in the morning but in the evening.
Every family’s experience with dementia varies; my best friend’s mom remains an absolute sweetheart who simply can’t remember anything for more than five minutes. Your glimpses of your mom’s dementia may have looked very different from either of the extremes between my mom’s volatility and my friend’s mom’s sweet decline. It is what it is, what it was, and we make the best of it. I thank you for your kind wishes, your English is just fine. :-)
For some, denial is the primary coping mechanism. My brother in law entered memory care last year at the age of 68, after years of decline due to a combination of FTD and alcoholism, both of which my sister in law was in denial about, until her husband’s declining functioning began to affect her life and safety directly.
The same is true of the GOP in congress, until their livelihoods are threatened, they see no problem (and the ones that do have largely chosen to retire)
But now, the denial is going to get harder to sustain. This morning it was reported that Denmark is divesting its national pension fund of all US treasury bonds, saying America is now an unstable, poor credit risk. I don’t know how much the value of Denmark’s holding are, but the EU holds something like $8-10 *trillion* worth of Treasury bonds. If the selloff spreads to other countries, the dollar, already down 12-15% over the past year, will plummet, and inflation and interest rates will skyrocket.
The impact on the wealth of the GOP members of congress may make it harder for them to deny the impact of Trump’s dementia on their own lives as well as on the nation as a whole.
If not, I expect the widespread, shared economic suffering of the nation will unify the vast majority of the electorate against Trump and the republicans come November.
(Sorry if this is a thread hijack – I tried to keep it relevant to the topic)
Your comment is absolutely spot on. The GOP’s denialism will crush them if they don’t pull their heads out of their butts and exercise their co-equal power to check the executive.
The US and the world could be crushed along with them if we don’t pressure them to catch a clue and take effective action.
Trump has been ‘divinized’, by his supporters and the GOP and the media in a way I’ve never seen before, and I’m 72, until March, anyway.
I’d hate to think that Trump’s degeneration and it’s policy results are the reflection of a general tendency.
it was only after my next door condo neighbor had to put her husband in a care facility that i learned he had turned violent and she was locking herself in her bedroom at night, and now i can’t but see Trump’s bloodthirst as a similar descent. only we don’t have a bedroom to lock ourselves in.
he falls asleep all day, plays with his Ballroom building blocks, signs whatever piece of paper Stephen Miller puts in front of him, rages all night. i don’t know what’s gonna break the cycle, but we have to believe we can.
My heart goes out to you, Rayne, your family and especially your mom.
Thank you for the post Rayne. These have been concerns you and I both discussed during his first presidency as I faced caregiving with my Mom. I’m sorry your journey is advancing to difficult stages.
Honestly, every day the news reports make me feel like I am still caregiving. It is a kind of caregiving trauma.
It is time to put him in LTMC.
I’m sorry you have to travel this path, Rayne. It’s a rough one, as you know. At least you and your siblings are all (apparently) on the same page about your mom’s status.
We’ve been down this path once with my wife’s grandfather, and are at the trailhead of it with my dad.
I’ve seen many families struggle to take away the keys as mom or dad is no longer capable to drive. “But I’m fine! I’ve been driving for decades and can still do it just fine.” Except they can’t – not when driving depends on reaction time as a car in front of you does something unexpected or a kid darts out from the yard chasing a runaway ball.
In the healthiest situations, when mom or day is mentally in decent shape, a reasoned conversation is all that is needed. That was the case with my Dad, who realized that his body simply wouldn’t react fast enough in an emergency and never wanted his declining body to be the cause of pain to some other family.
In less healthy situations, a simple reasoned conversation only sets off a bomb of anger and frustration. In cases like these, having the family and friends united in acting to protect mom or dad is the only way the keys get taken away. Picking the right moment, and making the right kind of preparations in advance, are critical — and even then, the frustration and anger will emerge. But if one of the neighbors has moved the car out of the garage while the kids are telling mom or dad that they are taking the keys, the angry parent can’t grab the key they’ve hidden away and shout “I’ll show you I can still drive” and get in the car, because the car is gone. It can feel ugly and harsh, but there comes a point when it has to be done.
Peace to you and your family, Rayne, as you continue to deal with your mom. Sounds like the longtime friends you mentioned are being a real source of support to you guys. Good for you, that you have people like that around your mom too.
Which brings us back to Trump.
JD Vance and others around Trump are likely looking for the right moment to take away the keys, because once they try to do this, all kinds of shit will hit the fan as Trump goes ballistic. Maybe the moment comes when he does something that he can’t unsee or explain away. Maybe it comes when one of the neighbors calls him out in ways that can’t be ignored.
And for all the screaming and shouting, Vance et al. have just one way of forcing matters to a head. They’ll have one shot at trying this, so they are no doubt waiting until the right time to take their shot with the 25th amendment.
“No, Dad, you’re still the President, but you need help to do this now. No, you’re not being impeached. You’re still the President, but you have to let us help you. You can’t do it alone, and we’re here to help you.
“And Dad, if you fight this, it’s going to get really embarrassing for you. Dems are going to pull out everything they can to make you look demented, crazy, and unhinged. But if we do this our way, we can protect you from that. You have to help us, or you’re only going to get trashed.”
Not saying that will work, mind you, but I have to think that Vance, Miller, and others who see Trump’s decline from a much closer perspective are looking at how to invoke the 25th Amendment.
Thank you, Peterr, for inserting the actual 25th Amendment into this conversation, and for suggesting a way those around King Trump might implement it. Your idea rests on Miller, Susie Wiles, and Vance being on the same page, something I question at this moment as Stephen Miller is reaping the whirlwind he has so long desired. Would Vance let him continue to blunder toward civil war?
I am with the camp that thinks his advisors are keeping him going for as long as possible to extract as much wealth and power as possible.
I do wonder why the saner members of the family aren’t stepping in:Jared and Ivanka come to mind.
And I wonder when the responsible media will stop protecting him.
You have to convince half of his Cabinet to go along, which includes such stellar minds as RFK, Jr., Bessent, Kegsbreath, Bondi, Noem, and all the rest who were selected to be both lickspittles and love having their own personal fiefdoms, and would baulk if Vance were in place because they would likely lose them.
The way things are going, public opinion is moving against the cabinet, particularly Noem, Hegseth, and RFK Jr. By invoking the 25th A, it would make Vance the Acting president, not president in his own right.
To make that happen, he’d have to make deals with each of them to remain in their good graces. Vance knows that Trump could (and would) go to the cabinet members directly and work on them to reverse their votes. This is the power that they have over Vance.
One other point to add in when considering if and when the GOP may remove Trump is that under the 22nd Amendment, Vance can still run for two more terms, provided he has not, “held the office of President, or acted as President, for more than two years of a term to which some other person was elected President”. So if Vance takes over a year from now, he potentially has a full decade during which he could serve as President.
I have a worry I can’t shake that the GOP’s plan is something like this: wait until the Democratic Party wins a majority in the House, and impeaches Trump early in 2026. Then the GOP supports the impeachment, removes Trump, installs Vance and promptly starts hammering two blatantly false narratives.
The first Big New Lie will be, “You can’t hold us accountable for anything Trump did – we impeached him! We support rule of law, etc, etc. Any attacks on *us* for all the awful things *he* did (and which the GOP is still doing) are pure partisanship!” And the second Big New Lie will be, “All the consequences from the most recent two years of Trump and Republicans’ enabling him are *actually* the fault of the Democratic Party who just won the election! Everything would be great if they just stopped trying to oppose the noble efforts of President Vance!” And the American public seems just foolish enough for those to work.
Thank you for this post, Rayne. My mother fought Alzheimer’s for 14 years, and now my sister has early onset AD. It is terrifying to watch. Dementia care is one of society’s greatest burdens. That people support a demented, evil man as he destroys everything we hold dear is heartbreaking.
Perhaps when the Epstein files are released, we will see which people in power in Washington and the mainstream media (like the NYT) are being blackmailed because they have a history of raping children.
dear rayne, and dear united states,
Sympathy and condolences for your daily struggles. So many are enduring so much in this area of health and human experience.
Since our national gene pool is so diverse, the epidemic of cognitive decline cannot be genetic per se. It may be an epi-genetic development exceedingly worthy of investigation, however.
This would be a worthy goal of DHS, and RFK could earn the gratitude of millions of Americans by making this a full-on crusade, such as JFK’s efforts to increase our levels of fitness, back in the day.
Instead, he and the gov’t he serves in make policy of destroying what assistance and research there is — that do exist for their fellow Americans to rely upon.
The single greatest beneficiary of Trump’s mental decline is Vladimir Putin. Dementia magnifies Trump’s lifelong personality disorder, rendering his malignant narcissism insatiable and his impulse control obliterated. With each degraded action, he damages US standing. Cui bono? The dictator whose greatest wish was to degrade America’s role and reputation.
Trump’s first term did not repay Putin as fully as he may have wished. But this second one threatens to do so. Far from ending the Ukraine war on his first day, Trump has allowed his administration to dither and both-sides a brutal invasion. In his second term’s first year, he has presided over unprecedented economic and political turmoil. If God isn’t laughing, Vlad surely is.
My dad was living in a memory care place. His strongest memories were of his youth in Germany. He didn’t remember much of his subsequent American life, but he very clearly remembered being kicked out of school in 1933 when Hitler took over, and how his father hired a boxing instructor so he could defend himself from local bullies. He died at 101, and though often confused, he knew enough to loathe Trump.
It is hard being a good child. You and your siblings are good people. How fortunate you have each other to go through this with.
I think the breaking point for Trump is Greenland. I don’t think the GOP is going to let an invasion happen because where is the money in it for them?
The Democrats can expedite getting Trump out of office by forcing the Epstein files into the open. The R’s certainly aren’t going to do that because so many of them are implicated.
My anger is with the European leaders who, apparently have been jollying grandpa along as shown in the private text conversations Trump posted in last night’s Truthisms. The European leaders have been acting like the Vichy government instead of standing their ground. Someone posted on IG a member of Parliament speaking on the floor today, and finally calling out Trump as a bully and stating that he can no longer be allowed to run roughshod over the world.
At least it is a start.
I just found the name of the member of Parliament, Ed Davey. Here is a link to his speech, break after the ? mark.
https://www.youtube.com/watch? v=qoTPSwReV8k
Ex Davey is not some random backbencher but the leader of the Liberal Democrat party. This got 12% of the votes in the 2024 general election and won 72 seats in Parliament. They are not in government, but a significant political current.
More power to him. Anything to stop Nigel and his doppelganger, Trump
I knew the husband of a Harvard Law professor who had dementia and heard about another Harvard Law professor with dementia. Harvard Law staff kept them from doing damage to themselves and others for years until they finally retired. I know someone who helped provide those services. Perhaps his expertise could be of use.
I am so glad you shared this, Rayne. The comments and discussion that grew are golden.
My mother-in-law lived with us during some years of her dementia. It was heartbreaking to watch my young daughter’s mind eclipse Grandma’s. Grandma saw it, too, and became aggressive/frustrated toward my daughter.
A consultant explained to us that there was very little in MIL’s mind that was still connected. *We* were inserting the connecting dots between experiences and meanings because we knew her so well. We were creating the narrative (“Oh, this makes sense because of such and such… remember?”). We made it all make sense.
I will never forget processing that evaluation and seeing how long we continued carrying on as usual for my MIL’s wellbeing when it did not provide any ease for her. Indeed, when she finally went into memory care, she buoyed for more than a year because she felt a safety and rhythm that we could not provide to her at our house, with a young kid here.
This is not a post about your mother. I feel for you, though, Rayne.
It is a post about the dangers of letting someone with advanced dementia continue on without care.
In a family, we spend many months wondering what to do. What can we do here with Trump? Who are our helpers? How do we speak about things that no one wants to hear? How do I call my Senators (Merkley, Wyden) and have a constructive conversation with their staff?
Sending good energy to your family, Rayne.
Rayne-
Thanks for this post. Hopefully you will continue to be blessed with the strength, wisdom and patience to deal with your Mom’s dementia for as long as is necessary. The main reason I have not been posting much here very often is that my spouse has dementia — it continues to progress and is now fairly advanced. It’s a difficult situation to deal with, but I absolutely refuse to allow this situation to drag me down. I hope you will do the same.
As for Trump, he’s evil, in the truest sense of the word. Nothing will happen until those who have the power to remove him fear the consequences of not removing him more than they fear the consequences of removing him. Thank goodness Europe is reacting in the way that they are. We should do what we can, within the bounds of the law, to make it clear to those who have the power to remove him that they will be better off if he is removed.
You have my sympathies; I hope you have adequate support. We’ll be thinking of you, just drop in when you can and let us know you’re okay. Best to you and yours in the days ahead.
I have seen dementia devolve into tape looping, replaying the same issue when triggered, along with no more teachable moments, longer and longer delays in accepting new facts until finally no new facts are received. With the worm tongues fully on the steering wheel what happens when Trump is no longer responsive to them? Frontal lobe dementia makes it all worse.
Now we are seeing people from “shit hole” countries on the travel ban list being detained at their citizenship swearing in ceremonies. “They” can control the hate mongering, “they” can’t control the progression of the dementia.
Yes, that tape looping. He’s had a set idea about people from “shit hole” countries his entire life and he’ll never exit that loop. Stephen Miller uses that stuck-ness to ensure his ethnic cleansing is carried out. Neither of them give a shit for the presidency or the nation, only the power of the executive and their white supremacist agenda.
Everything Trump really wanted to do during Trump 1.0 with the travel ban he is doing now. His actions the first week of his first term told us what to expect; most of us didn’t factor in how dementia would shape the execution.
Given Trump’s unconditional fealty to fossil fuels – not matched by any real understanding of the business, evidenced by his fixation on near-worthless Venezuelan oil sludge – it would be grim poetic justice if his dementia were caused by them. The causal link between mtia and exposure to ambient air pollution is not speculative. It has been established by crunching data on 12 million of Medicare patients, matching their postcodes with the network of pollution sensors. https://www.nature.com/articles/s41467-021-27049-2 With a sample this size, the statistical link is bomb-proof. The authors estimate that exposure differences account for 6 % of the difference in dementia rates betwenn large US cities and small ones,
The study cannot tell us how much dementia can be attributed to baseline pollution, só the 6% is probably an underestimate. The inhabitants of Wyoming generally breathe unpolluted air, but they drive long distances in their large gas-guzzzçling pickups. A grisly insight into this baseline burden is provided by a small Belgian study of 25 placentas from live births in the non-industrial college town of Hasselt. https://www.theguardian.com/environment/2019/sep/17/air-pollution-particles-found-on-foetal-side-of-placentas-study They all had millions of carbon nanoparticles that had passed through the placental barrier. The researchers did not of course take samples from the hearts, brains and livers of the babies, but these presumably also had their share of the poisonous little gift from the oil industry to the children of the world.
This is not for posting but I caught a typo in Rayne’s post that I thought should be corrected online.
28th paragraph; “The shuffling gate down a ramp. The odd difficulty with stepping over…”
Gate should be spelled GAIT.
Gait: a manner of walking or moving on foot
[Welcome to emptywheel. Please choose and use a UNIQUE username with a minimum of 8 letters. We adopted this minimum standard to support community security. Because your username is too short and common, your username will be temporarily changed to match the date/time of your first known comment until you have a new compliant username. /~Rayne]
Fixed, thanks.
Rayne, I never know what to say, but please know I’m holding you in my thoughts. <3
Thanks, harpie, much appreciated. Always nice to see you here in comments. :-)
What a terrifying thread. So when is my turn? Never been to smart to begin with. Or, even worse, my wife’s.
I’m scheduled for a colonoscopy later this year, perhaps they will be able to tell me.